Is Autism Cause by the Weather?

Since we live in Oregon, I was obviously intrigued when I recieved the following email today:

Autism linked with rainfall in study
WASHINGTON (Reuters) - Children who live in the U.S. Northwest's wettest counties are more likely to have autism, but it is unclear why, U.S. researchers reported on Tuesday.
Michael Waldman of Cornell University and colleagues were searching for an environmental link with autism, a condition characterized by learning and social disabilities.
They got autism rates from state and county agencies for children born in California, Oregon and Washington between 1987 and 1999 and plotted them against daily precipitation reports.
"Autism prevalence rates for school-aged children in California, Oregon and Washington in 2005 were positively related to the amount of precipitation these counties received from 1987 through 2001," they wrote in the Archives of Pediatrics & Adolescent Medicine.
Dr. Michael Fitzpatrick, a London physician who wrote "Defeating Autism: A Damaging Delusion", expressed doubt, noting that autism diagnoses are on the rise in all climates.
No one know what causes autism, whose symptoms range from severe social avoidance to repetitive behaviors and sometimes profound mental retardation.
The U.S. Centers for Disease Control and Prevention estimates that about one in every 150 children has autism or a related disorder such as Asperger's Syndrome. Rates in many countries have been rising, although that may be partly due to increased reporting and diagnosis of the condition.
Doctors agree there is a genetic component to autism. They also theorize that something in the environment and possibly conditions in the womb can trigger the condition.
The researchers said their study supports this idea.
Perhaps infants and toddlers are kept are kept indoors in front of the TV more in rainy climates, and that somehow causes brain changes, they said. Or perhaps they breathe in more harmful chemicals while indoors.
Vitamin D deficiency caused by insufficient time in the sun might also be a trigger, they said.
"Finally, there is also the possibility that precipitation itself is more directly involved," they wrote. Perhaps a chemical or chemicals in the upper atmosphere are transported to the surface through rain or snow.
"In recent years autism has been blamed on everything from discarded iPod batteries to mercury from Chinese power stations, from antenatal ultrasound scans to post-natal cord clamping, from diet to vaccines," Fitzpatrick said in a statement.
The U.S. Centers for Disease Control and Prevention has launched a long-term study to find the causes of autism and other childhood conditions.
(Reporting by Maggie Fox; Editing by Michael Kahn and Alan Elsner)

Where has the year gone?!

It seems like just yesterday I was posting about our trip to visit daddy last spring - and to my horror I just realized that I haven't provided an update for my loyal readers for half a year!

2008 has been a little rough for us; life without daddy has been difficult and living apart for so long has started to take it's toll. But despite the obvious hardships, I'm so happy to share with you that Jacobi has made some great strides this year, and continues to grow into an amazing young man.

Last week was Halloween, and we were blessed with a visit home by daddy. Jake was very excited to see his dad, and started planning for the reunion by shopping for Halloween decorations whenever we went to the store. By the time Randy got here we had indoor decorations, out door decorations, costumes, and candy buckets. Jake was ready to go!

This year when I asked Jake what he wanted to be for Halloween, I was a little surprised by his answer. I had expected him to say he wanted to be Sponge Bob, or maybe a pinata (after his favorite video game, Viva Pinata). But as we were looking through the costume catalog and I flipped to the super hero section, Jake spotted a picture of the new dark batman and shouted with glee "Batman! Jake is batman!"
"Really?" I asked, "Are you sure?"
"YES! BATMAN!," Jake replied.
"But Jake, if you go as batman you have to wear the batman MASK - and that goes on your head like a hat. Are you SURE you're going to be able to do that?"
"YES!" he shouted.

I had my doubts. At nearly 7, he's never been able to tolerate anything on his head. In fact he has never been able to wear anything on his head other then a light hood. Even when dressing him, if I take too long getting his shirt over his head he freaks out, so I highly doubted he was going to put this batman mask ON, let alone wear it for an hour or two of trick-or-treating.
But after conferring with his dad it was decided that I would purchase the costume that Jake picked out, and we'd just see what happened.

Finally the big night arrived, and as the sun went down Jake and I started to get our costumes on. When I came down the stairs I was greeted by daddy helping Jake button his cape - with the Batman mask securely over his head. As soon as the cape was latched, he ran up the stairs to check himself in the mirror!

Not only did Jake wear his Batman costume, but he trick-or-treated for nearly an hour, skipping and running and singing, and joyously waiting for the next person to open their door so he could say "TRICK OR TREAT!"

His reward for his big Halloween adventure was some much needed time with his dad in a fairly social setting, and coming home with a great big bucket of candy. Of course he won't eat it, but he got it, darn it!

We're back - and what a trip!

Jake is in love with the Eiffel Tower. Back in February, he found a photo of the ET online, and from that moment on, he was hooked. Anytime we took a drive and he would see the big electric towers, he would call them Eiffel Towers. The giant red and white ones were "candy cane Eiffel Towers" and basically anything that was tower shaped would set him off on a conversation about the Eiffel Tower.

In early March Randy and I decided that we needed to try and get the family together if even for a few weeks, so I booked tickets for Jake and I to travel to Germany to see daddy. It was a great trip and after not seeing daddy for almost half a year, it was an emotional and wonderful time.

We spent two weeks hanging out and seeing sights in Germany and Belgium, including castles and picturesque towns and expansive vistas, but by far the highlight of the trip was the day we took Jake to Paris.

We left Ramstein, Germany (about an hour outside of Frankfurt) early on a Tuesday morning. The trip through Germany was quick (gotta love that autobahn!) as well as scenic. Shortly after we crossed over the French border, we hit our first toll booth, which was 3.40 Euro (about $6). As with any time that we take a road trip, about this same time I had to use the restroom. Using the restroom in Europe is VERY DIFFERENT then in the US and they seem to come in two types - really nice and clean and you have to pay to use them, or free and really disgusting and without TP. Luckily, France seems to go the pay-to-pee route, and the restrooms were all well stocked with tissue!

Germany's rest areas are pretty basic, but France, Belgium and Luxembourg all had FAB rest areas - expansive plazas with huge Shell gas stations stocked with tons of yummy European junk food. I spent a lot of time on all of our road trips checking out all the rest area's had to offer!

After my bathroom stop we traveled through another 21.00 Euros worth of tolls, to finally reach our destination a half hour outside of downtown Paris, at Euro Disney. (We decided to park at Disney and ride the train in, so we didn't have to try and park and drive in Paris.) Once inside the outer sanctuary of Disney, we hit the train station and paid our 30 Euros to take the train into town.

Jake thought the train was pretty cool, but I don't think anything prepared us for our departure - off the train and down the tunnel and up the steps and into the light - right in front of the Arc de Triumph! It was truly amazing to be standing there in the heart of Paris, looking at the Arc that Napoleon had built centuries ago to welcome his soldiers home from battle.

We decided to try and cross the crazy busy streets to get a different view of the Arc, and after wandering around and dodging traffic for about 10 minutes, we landed in a spot that had been cleared for some construction and had a large contingent of pigeons gathered. Jake LOVES pigeons, so of course he wanted to stand there and look at them and have his picture taken. Randy and I were looking at the Arc trying to decided if we could make it to the center, when Jake suddenly shouted, THERE! I want to go THERE! We followed his pointing finger, and over the top of the buildings off in the skyline, there it was - the top of the Eiffel Tower.

We consulted our "yes, we're American tourists" giant map of Paris and realized that we were indeed within walking distance, so we set out across city streets toward our destination. The walk was pleasant and scenic (I don't think there is bad scenery in the part of Paris we were in) and before long we came to a beautiful city park and there it was, in all it's glory, standing across the river -Jake's special Eiffel tower.

We sat at the bottom of the tower and had frites (french fries) and crepes with chocolate sauce, and then we walked under the tower to one of the gift shops, where Jake bought himself an Eiffel Tower statue. Then we walked across the expansive lawn to the French Military building.

All of our walks were wonderful, the city is amazing and alive in a way I have never experienced in another city. Jake was in awe and I think he could have walked across the entire city if we would have had the time, but way too soon it was growing dark and we had to head back to Disney to claim our car for the five hour drive back to Ramstein.

When we came out of the train station at Disney, it was close to 9PM, but the Disney village was alive with diners and shoppers and the whole thing was glowing with neon and pulsating with loud disco music. We hadn't eaten much more than our snack at the tower, so we decided to walk through the village and see if we could get a bite to eat. As we came to the far side Jake yelled "I want a cheeseburger!" and sure enough, there was a McDonalds. We sat with Jake while he ate, and then we decided to hit some of the shops, so we spent the next 40 minutes walking through the village and checking out the wares in the myriad of Disney stores. Jake found a stuffed Nemo that he couldn't live without and nearing 10:30 we walked out of the Village gate and headed for our car.

Suddenly Jake stopped. "WAIT!" he shouted?

"What?" Randy and I asked simultaneously.

"I have to dance," Jake said.

Randy and I looked at each other and Jake started dancing to the pulsating disco beat, throwing his whole little body into it, he danced in circles and up and down the empty square. "I'm doing Jake's Disney disco dance!" he shouted. "I'm DANCING!"

Watching him in that square with the neon lights around him and the spotlights shooting into the air behind him, dancing with pure joy and glee to the thumping disco music was by far the highlight of not only our trip to Paris, but our entire trip through Europe. It was like at that moment he realized that he was in a special place, a place that was created for children, where they are allowed to do and be all that they can imagine, and maybe even a little more. Maybe, just maybe even an American disco dancer in Paris.

Autism Q & A Under way!

We've sent out our first series of questions for our Q&A sessions on parenting a child with Autism. If you would like to be one of our participants, please email me and we'll get you started!

Thank you Donors!

Donations have continued to come in over the Christmas season, and we are now up to $251! I know it may not seem like much to many of you, but we are truly grateful for every single penny that comes in, so THANK YOU DONORS!!

Christmas is for Kids

I hope you all had an amazing Christmas and that the new year is finding you well. Things have been quite hectic here, but I am hopeful they will settle down soon and we can get back into some kind of routine.

I was worried about Jake this year with his daddy gone, and I've been really worried about how he's going to handle my folks leaving at the end of the month when they move back to WI. It is very hard for Jake to have people leave him - once he is attached he carries that for ever and he doesn't understand why people he love leave him.

Jake has always had a really strong connection with dogs. Dogs and horses are the only animals that really seem to bring him to life in a good way - it's like they draw something out of him that helps him make connections that he normally isn't able to make.

Over the years, Jake has been exposed to dogs from puppy stage to very old hand, and he has enjoyed and interacted well with them all. During the past year and a half or so, whenever he has an encounter with a dog, he will ask Randy and I for puppy for anywhere from 1 day to two weeks after the encounter, and over the last few months his requests have grown to the point where even if he saw a dog on TV or in a car in a parking lot, he would ask for a puppy.

I am also a long time dog lover, but Randy is not, so it was a huge surprise to me when during a conversation a few days before Christmas, he said to go ahead and get Jake a puppy. It's not that Randy doesn't like dogs, he likes them just fine - he just doesn't like them in the house. In fact, he hates them in the house. Being on the Autistic spectrum himself, he likes things to be very neat, orderly and calm, which means dog hair on the furniture, dog smell in the house, and barking dog chasing cat are all very bad things. But, loving his little boy the way he does, he was willing to let a furry new friend into the house, with a few conditions.

First of all, we agreed to get a full grown dog, one that was already potty trained and had some manners. Second, since it would be a house dog, we agreed to keep it small, to around 15 lbs. And last, since pet hair is an issue, we agreed that we would only get a short haired dog. Oh, and since money is very tight, we agreed that we would not spend more than $50.

With agreement in hand, I set off to find the perfect dog. I went to the obvious place to start a search for anything, Craig's List. After reading about 1,000 ads, I still hadn't found the dog that was right for us. Next I went to all of the local pet shelter websites, where I was shocked to discover that you can not adopt a dog for under $150, and a good dog could be $300 or more! This from the Oregon human society!

I was running out of both time and a positive outlook when a few days before Christmas I received a note from a local dog breeder, telling me about a new litter of puppies she had. She sent me a link to an online ad, and there some of the cutest puppies I've ever seen in my entire life! Little fuzzy balls of fluffy hair with bright eyes and a sparkle of intelligence, my heart melted for a second, before I realized that A.) these were long haired Australian shepherd puppies, and B.) there was no possible way they would be within my price range.

So I emailed the breeder back and told her I would love one of her puppies, but my budget was $50, so there was no way I could take one. A short while later she emailed me back, and we chatted a little about our families; she had two sons that had recently returned from Iraq, and a daughter who was into horses.

Around the same time I spoke with Randy, and told him about the amazing puppies. "NO!" he said. "They get big, they are hairy, and they are really active. Forget it." I told him OK, but now it was late the night before Christmas eve, and so we could forget about getting Jake a dog for Christmas.

The next morning I woke up and had an email from someone who saw my "dog wanted" ad, asking me if I was aware that there were several dog trainers in the local area who trained dogs to work with Autistic kids, as therapy dogs. I started looking into it and found one of them was located one town away. I got in touch with Randy and said, "Maybe we can alter our criteria some, since we can take the dog to one of these speciality trainers." Randy was luke warm to the idea of getting a puppy and letting it grow up and then sending it the trainers, so I let it go.

A few hours late, I heard back from the breeder that I had been chatting with, and she told me that she might be willing to take my $50, and trade me out of the rest of the balance due. Her daughter needed some horse tack and they would be interested in trading a puppy! I thanked her, but let her know that my husband really wanted a dog that would stay under 30 lbs, and at the average of 45 that Aussies attain, it just wouldn't work out.

I couldn't get the picture of that cute little pup out of my head though, and since time was running out, I did the only thing that was left to do, I prayed. "Please Lord, send us the right dog for us. " Within a few more hours I had a message from Randy - get the puppy.

I immediately contacted the breeder, and told her that we could take one after all! I was thrilled at the idea of giving Jake a puppy for Christmas, and I was amazed at how quickly it had all come together, when the breeder gave me another surprise - her husband would like to dress up like Santa and deliver the puppy Christmas morning!

Although I know that Jake can get overwhelmed in situations like these, I still didn't hesitate - I knew this could be a memory that he would cherish for a lifetime - so I said we would love it if Santa could come over. Then I headed out to the store to buy some small puppy treats - a few bones and a little collar, and I wrapped them up and stuck them under the tree with Jake's presents.

Christmas morning really was magical. Jake woke up in a very "on" mode, and after a call from the breeder to set up a time for Santa's arrival, we went about open presents. I really can't describe how the visit from Santa went, but you can see for yourself by watching the video!

As you can see, it really was a special time, and in two short weeks Skunk has become a really great member of the family.

I would like to thank the Bakers, who really went out of their way to come here Christmas morning and bring Skunk and Santa to Jake. They held off on opening their own gifts and starting their own Christmas to make sure Jake enjoyed his, even though we were complete strangers. Thanks Melody and fam!!

A Picture is Worth A Thousand Words

Jake started Kindergarten this year, and one of the bonus "fun stuff" items for me was waiting for "picture day" so I could put the very first "school portrait" in his education scrapbook. The day of pictures Jake and I picked out the perfect outfit, combed his hair, polished his glasses, and off he went. I know it seems silly, but this picture was a really big deal for me, because it would be the foundation picture in his school scrap book - the first picture of him turning into a big boy, and the last will be his high school graduation.

About a week before Randy came home on leave, I got the pictures back. My mom actually saw them first and called me into the room. "Jake's pictures came back today," she said. Her lack of enthusiasm was my first clue.

I pulled pictures out of the envelope and stared at them for a few seconds. "Uh oh," I said."

"What do you think happened there?" my mom asked.

"Ummm...I don't know, but HEY! We can do a retake!" I replied.

I sent the pictures back with the "unaceptable" and "take retake" boxes checked, and figured that all would be fine. Except it wasn't fine - because Jake was home with pneumonia on the day of the retakes, and we weren't able to get them re-shot.

I really wanted to put photos in with Christmas cards, so I knew I was going to have to do something. Since money was tight, I decided to take him to one of the discount stores that has an in-house photo studio. When I went sign him up for pictures, I told the lady taking apointments that we would need extra time, and that it was very important that not have to wait long upon arrival, so could we please get an appointment earlier in the day. She ended up scheduling us as the first appointment after lunch, which should have meant no wait, so I said OK.

We spend a lot of time at this particular store shopping, and so it's a place that Jake is both familiar and comfortable with, but even so, he only has about 1o minutes of "wait time" in him before he starts getting very restless, which leads to agitation.

When we arrived for our appointment, we were the only people in the waiting area, but both of the studios had people in them. Fifteen minutes go by and we're still waiting to just GET IN A STUDIO, and Jake's still hanging in there. He was really excited about having his picture taken, and we spent the time talking about how great it was going to be to get to go in the studio and see the big camera.

After we had been waiting for about 20 minutes, I went up to the counter and said the gal who was working, “Look, when I signed up I told them that Jake has special needs and that we needed to get in within 10 minutes and they assured me that we would.”

She snapped back at me, "Just a minute!"

About this time 2 moms and their two boys, probably 11 and 12 years old, come and crowd in the very small waiting area, followed by a man and his son, who was probably about 8. They stood right in front of the only opening, in effect trapping Jake in a very small, confined space that now has a lot of noise and activity. At this point Jake rapidly starting losing what grip on reality he had. He stood up and started batting at imaginary things in the air as the moms stared, the kids stared, the dad stared.

The dad with the little boy did not come across as a nice person. When his son went to sit down, he grabbed him by the arm HARD and said "I told you NOT TO MOVE,” which of course Jake responded to by mirroring him, "I TOLD YOU NO MOVE!" Jake shouted at the guy from the across the room, giving him is best dirty look. The man shot a dirty look back, and at that point I was about ready to come out of my chair.

The two boys that were siting next to us start talking to each other and Jake walked over and said, “Hi Boys!” He said it with a smile and was very friendly, and the boys looked at him like he had worms crawling out his ears. “My name is Jake! I'm Jake!” He said, again with enthusiasm, and again they just stared at him. In Jake's world, that must mean they didn't hear him, so he stepped closer. The one boy actually leans back in his chair like "get away from me" and the other boy goes' YOU ARE Weird! The moms did nothing, just stood there and stared.

Jake looked at me like he knew something bad just happened, but he wasn't sure what. At that moment, when my heart was about to break, one of the studios emptied out, so I took Jake in there to get him away from the crowd.

We waited in there for another ten minutes…so he has now waited for over half an hour, which is really an outstanding amount of time for him to basically just stand around and wait. Finally the "photographer" came in, and I explained to her that Jake has Autism, which means it will take a little longer to do his pictures, and that I had arranged for extra time when I signed up. She assured me that was fine and that she had a friend who has an Autistic child, so she knew all about autism.

I wish I had a quarter for every time someone said to me, "Oh, my niece/neighbor/friend/boss's sister/third cousin on my step mom's side has a child with Autism, so I understand!" At the same time I was taking my quarter, I would turn around and bet it double or nothing that the person claiming to "understand" is actually completely clueless. I would then take my one million dollars and open up the most amazing therapy center you could possibly imagine. But I digress.

Jake had to climb up on a table covered with a soft rug and balance at a weird angle for the "photographer" to get the shot she wanted. I explained to her that he has difficulty with balance, and that the longer you try to get him to hold still in one spot, the less likely it is that it's going to happen. (I'm quite sure that's why we got the "what is THAT" pictures from school). Finally she gets him right where she wants him and she says "SMILE" and Jake gives his very best giant, fake, over-the-top Cheshire cat grin.

I told her that wasn't going to do, and she started barking orders at him, "Turn RIGHT!" "Turn you head RIGHT!" "He doesn't understand that, " I said. And before the words were completely out of my mouth, she had darted across the room and grabbed his head to try and turn it the way she wanted. It never occurred to me say, "by the way, many autistic people do not like/want to be touched by people they love, much less strangers, so what ever you do, don't touch my son." Because, yanno, she told me SHE KNEW ALL ABOUT AUTISM.

Of course the unwanted touching and the barking of orders confused and annoyed Jake, so he immediately started to become agitated. Once he is agitated, you can pretty much forget getting him to sit still much less smile and take a pretty picture, but she did manage to snap three more fake smile shots.

At this point she tells me that she'd like to try a different style of picture that would be easier for him. She pulls down a black background, we get him to turn sideways, and she tells him to look up at the sky, to where there is a little teddy bear hanging from the ceiling. Jake looks at the bear and starts to smile, and SHWAMP!, the flash goes off on the camera, right in his eyes. Jake threw his hands up to his face like we do when the sun is in our eyes, and he slowly peaked out from behind his hands, all the time blinking wildly and now physically shaking. He dropped his hands for just a second and SHWAMP! she took another picture. "ENOUGH!" I shouted. He can't take THAT! (In my head, this was followed by, "what are you, fucking CRAZY??"

Jake started crying and he was shaking and I went and picked him up. "No more light," he whimpered in my neck. "No more." "No more," I told him, "it's all over now. We're all done."

"Well I guess that should do it!" the girl said. I looked at her like SHE had worms crawling out her ears. "Follow me and we'll look at his proofs!" The three that she took with the Christmas background were part of the $9.99 portrait special that I had signed up for. I wanted these for my Christmas cards, to send to all of the friends and family who haven't had a picture of Jake since he was born. There were only three choices, and he looked like a goof in every one. "I don't like any of these," I said, "but I guess the first one will do." So she says to me, "well usually I take 8 or 9 on that background, but since he was such trouble I just did the three.

You will be proud to know that I help my composure, and lucky for everyone in the studio that day, the first of the traumatic flash pictures was actually quite lovely. Of course those were NOT on special, so I had to pay full package price, which was $50.00.

Next time I know that I need to immediately lay ground rules for the picture takers. Through out this story you will notice that I refer to the gal who took the pictures as the "photographer." That is because while that is the title the studio gives her, she is NOT a professional photographer. My photographer friend, Cyndie Planck, would have gotten beautiful, joyous pictures of Jake without any trauma to him at all. I wish I could afford to use her all of the time, but I have to make choices while I'm dedicating our resources to getting Jake's Place up and running.

I also know that when people say, "I know all about Autism" I need to act like I didn't hear a word they said. I need to be proactive and educate every single place I go with Jake, because he can't advocate for himself and most people don't know nearly as much as they think they do.

If you have a story about getting your child's picture taken, please share it with me, I really care about what you're going through, too.